Living with Congenital Hyperinsulinism...

In 2011, Congenital Hyperinsulinism (HI, for friends) crossed my path. It came hand in hand with my first daughter: Paula.

A few hours after becoming a mother, my world changed completely and filled with sugar controls, IV lines, nasogastric tubes and lots of medications…

Yet, finally the damn words arrived: “congenital hyperinsulinism”.

I don't want to lie to you: I was shocked

In that moment, I didn’t know what HI was, what insulin does, how the pancreas works … Nor many other things which are important to know when you have a child with this disease.

Low blood sugar is bad, really bad

In order for our bodies to run properly, we need a constant energy supply. That’s why, when things go wrong: you have a problem.

The organ that consumes most energy is the brain, that’s why “lack of sugar” causes neurological symptoms. In fact, it can cause permanent brain damage.

This is the first thing I wished I had learnt when I became a HI mom…

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“Success is the sum of small efforts repeated day in and day out"

-Robert Collier-

Funny glucometer cases, medical alert wristbands, insulin pump cases, books…

Surely there is something for you!

You can't put the cart before the horse...

I know you are looking forward to learning much more about hyperinsulinism… Is it our fault? Will our kid be healed?

However, I think parents should know maaaaaaaany other things that are more important than the wrong gene in your child or how hereditary diseases are transmitted…

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And do not miss anything at all!

Some defect in the mechanism of insulin secretion...

Congenital hyperinsulinism can have many different causes, but they all have in common that “something fails” in how insulin should be secreted…

Some medications exist, in order to correct these mistakes. However, in many of the children with HI, drugs don’t work or have a poor response. Yet, this makes it even more complicated to control HI at home!

And what do I do if the medication does not work?

Nowadays, many hospitals choose to improve nutrition at home, before opting for more aggressive options such as surgery.

Remember that if you have any questions, you should consult the health professionals who take care of your baby…

The importance of feeding

Feeding doesn’t affect blood sugar levels in the same way… Some foods raise blood sugar faster than others.

That is why it is important to follow some good feeding guidance when you have a child who has problems regulating their blood glucose levels!

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Glycemic Load (GL)

No one wants to cross their path with an illness, even less, if it is a disease of their child. However, sometimes storms give way to shiny days.

This is the story of our own road to happiness.

DO WE GET IN TOUCH?

I will be happy to reply to you 🙂