My name is Cristina and I am Paula’s mother, the main reason for running this project.
Paula was born on October 23, 2011. Chance caused her to be born with a rare disease called Congenital Hyperinsulinism (HI), which is why she is permanently at risk of suffering “sugar drops”.
Starting the HI road was quite complicated. Not only was it the confusion that implies that your daughter is diagnosed with a rare disease within few hours of birth. Also, it was the lack of information available at the time.
In all this time, I have had to learn a lot and ask even more. In the end, I have decided to launch this blog, in case all the information I have collected over the years may be useful for other families.
Since February 2016 I have been the president of the Spanish Association for those Affected by Congenital Hyperinsulinism (AFHICO), the organization representing this group in Spain.
I also regularly collaborate with Congenital Hyperinsulinism International (CHI), the organization that represents them worldwide.
Beyond all the information that we can spread from the associations, I want to share the knowledge that has served us at home in the daily management of the disease. That’s why I’m here!
I want to make it clear that I am not a doctor and that in HI, as well as in hypoglycemia, every person is a different case. Therefore, I invite you to read in detail the responsibility release that you have available on this website.
In addition, I would like to point out that if you have doubts about the treatments to follow, the best thing you can do is to consult with qualified health personnel. There is a lot of information on the internet on many different topics, but when it comes to health issues, there’s no need to do self-treatments at home.
One more thing: if you feel like writing to me, I will be happy to receive your comments at firstname.lastname@example.org
Thanks for reading this! I hope this website may be useful to you 🙂
DO WE GET IN TOUCH?
I’ll be happy to talk to you 🙂