RARE DISEASES

In the European Union, a rare disease is defined as a disease that affects less than 5/10000 of the general population.

It is estimated that there are between 6,000 and 8,000 different rare diseases. Of these, it is estimated that about 4000 have a genetic component.

These pathologies are often chronic and can threaten the lives of those affected by them.

One out of every 17 people will be affected by a rare disease throughout their lives.

In Spain there are more than 3 million people affected
and in Europe more than 30 million.
That means between 6% and 8% of the population.

75% of these diseases affect children and are usually manifested within the first years of life.

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RARE DISEASE CAUSE:

%
DEATHS OF CHILDREN
UNDER 1 YEAR OLD
%
DEATHS OF CHILDREN
BETWEEN 1 AND 5 YEARS OLD
%
OF THOSE AFFECTED DIE BEFORE THE AGE OF 30

If you want to learn more…

We recommend you visit the following pages if you want to expand your knowledge on rare diseases:

La Otra Cara de la Insulina reminds you that we are not doctors. 
If you have any doubts or questions about treatment, 
you should consult qualified medical personnel.

No one wants to come across a disease in their life, much less if it is a children’s disease. However, there are times when storms give way to sunny days.

This is the story of our own road to happiness.